Life after deep brain stimulation
Summary
John Nelson, two years post-DBS surgery, shares his "bonus life" and ongoing advocacy against mental health stigma. He discusses the daily effort of brain rehab, the importance of empathy in healthcare, and his new monthly support group for high-functioning individuals with severe depression. Nelson also reflects on his family's recovery and his mission to change societal perceptions of serious mental illness.
Topics discussed
Introduction and context for the bonus episode
Checking in with John and holiday reflections
John's friendship with artist Amanda and her artwork
Details on John's monthly peer support group
Two years in remission and the concept of 'bonus life'
Rehabilitating the brain and managing sadness
Societal stigma and the 'non-casserole' disease comparison
Describing the physical symptoms of severe depression
The tattoo experience and regaining physical sensation
Embracing the 'bonus life' and advocacy momentum
Impact on family dynamics and the upcoming daughter trip
Parenting goals and the San Francisco trip details
Ongoing research commitments and future device upgrades
Comparing clinical trial care to the US mental health system
The importance of daily mood maintenance and irritability
Humor, family jokes, and the return of John's personality
Explaining the disease to those without lived experience
Future goals and the 'Pulverize the Stigma' initiative
Updates on John's wife and children
Final message on empathy and closing remarks
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