Survey finds endometriosis diagnosis wait times at 14 years on average!
Summary
Lunchtime Live discusses a new survey revealing that Irish women wait an average of 14 years for an endometriosis diagnosis. Guests Robin, Amelia, and Dyrran share personal stories of delayed care, ineffective surgeries, and the need to travel abroad for specialized treatment. The episode highlights the lack of local specialists and the physical and emotional toll of the chronic condition on daily life.
Topics discussed
Sponsorship: Ornod and Shopify
Introduction: Endometriosis awareness and 14-year wait
Robin's story: Early symptoms and lack of education
Robin's journey: GP delays and private diagnosis
Post-surgery recovery and recurring symptoms
Dyrran joins: Significance of new survey data
Dyrran's experience: Misinformation and complex care
Seeking treatment abroad and current medical status
Robin's update: Stagnation and need for advocacy
Discussion on the necessity of traveling for care
Amelia joins: 14-year diagnosis timeline
Ablation vs. excision: Surgical limitations in Ireland
Daily impact: Pain, exhaustion, and bowel issues
Future plans: Financial schemes and overseas travel
Call to action: Need for specialists and serious recognition
Listener feedback and closing remarks
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